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Monday, January 10, 2011 - 1:53pm

It's MRI week!  Since our last update we have had several treatments on the new regimen (Avastin/CPT-11).  Things have been going pretty well all in all.  Hailey did get sick for about 24 hours after the first few treatments earlier on, but we've gone about 3 treatments in a row now where she has not gotten sick at all afterwards.  She seems to be handling it better now.  No idea if that will continue. 

Of course, this is a big week because we have her MRI on Thursday and that will give us an early look as to whether this new treatment is working.

We are also still set to fly out to MD Anderson in late March to see their Proton Radiation center and meet with the doctors to determine if that is a realistic next option for Hailey if this current treatment fails and no other drug option becomes a better choice.

Basically, it's business as usual over here.  We're plugging away, continuing treatments, trying to live life.

Mark your calendars for the Team Hailey 5k.  It's coming April 16th!

Friday, November 19, 2010 - 11:42am

Just in time for the Holidays, we'd like to make you aware of a brand new website put together by one of our most generous and loyal Team Hailey sponsors throughout the years, Envision Ink. The product is called 'Compose Yourself' and allows you to create your own, truly personalized communications, quickly and easily online. From Holiday cards, to baby announcements, to your own custom stationery, Compose Yourself allows you to communicate with friends and family in a way that reflects who you are…with your own unique sense of style. 

The best part about this is EnvisionInk will be donating 25% of all sales for this product to the PLGA Foundation. To utilize this product and support the foundation at the same time, please go to www.composeyourselfprints.com/teamhailey/  and use the Promo Code: TeamHailey.  It is important that you use the link above and the promo code if you want the 25% to go to the PLGA Foundation.

Please take some time to go to the site and browse the designs they have available, then add your own creative touch to make them your own. And Please remember to check back to their site often as they will be constantly adding new designs and product offerings to keep up with all the special moments in your lives.

Tuesday, November 16, 2010 - 8:23am

Dear PLGA Families-

We need your help and that of your social networks.

We are in a CRITICAL 48 hours to communicate with the National Cancer Institute regarding the importance of funding PLGA research in their 2011 budget allocation.  Please click on the link below and sign the PLGA Foundation’s petition to NCI. Then please forward to your networks and ask them to do the same. This has enormous benefit for children with any type of brain cancer – now the leading cancer killer in children.

Also, if you are on Facebook, please post something with the link and ask your friends to “sign” our petition and re-post.   Same for Caring Pages, blogs, etc.

Signing the petition takes 30 seconds....

Go to:  http://www.thepetitionsite.com/1/Kids-Brain-Tumor-Research-Funding/

Please help us spread the word!

Thank you!

Friday, November 5, 2010 - 1:31pm

We had our second treatment yesterday on the new regimen.  Hailey did pretty well all in all.  She was sick last night from it, however, which hasn't happened to her much.  After a pretty rough night, she did seem to bounce back to normal this morning and after a delayed start has been back to business as usual so far today.   
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