Friday, April 1, 2011 - 10:52am
April 5th is the deadline for registration for the Team Hailey 5k to guarantee a t-shirt and get the lower pricing. Registrations will continue to be accepted online until approximately April 15th and in person up until the morning of the event, but we cannot guarantee a tshirt after April 5th and the price of the event goes up a bit.
We returned on Tuesday from our trip to MD Anderson. We reinforced what we already knew about the Proton Pencil Beam Radiation therapy and got a chance to meet the doctors and see the place in person. It was a worthwhile trip. This treatment will continue to be one of the very few options available if/when we need to make another tough decision on changing treatments. It comes with it's own list of risks and side effects, but so does everything else currently available. The plan for now is to continue the Avastin/CPT-11 treatment and hope this brings more shrinkage with little side effects. At some point we will stop that treatment, hope for some significant time before the tumor regrows, and then reassess our best options at that time hoping that newer and better drug options will emerge and prove themselves or take the leap and do the Proton Radiation. Of course all of this could be sped up if for some reason the current treatment stops working or starts causing problems. You just never know in this world...
On a side note, the girls did a great job on the trip and had a blast! They were so fun and easy to travel with. It was really special for us to watch them and take this trip with them, despite one part of it being for medical reasons. They are growing up so fast and becoming such good young girls!
Wednesday, March 23, 2011 - 6:28pm
Need Bread? Breadsmith of Appleton is helping out Team Hailey. Print the attached coupons with the link below and head into Breadsmith between April 1 and May 15. They will donate to Team Hailey $1 for every loaf of bread you buy. There is no limit to the number of coupons you may use during the 6 weeks. http://www.teamhailey.org/breadsmiths.pdf
Thursday, March 3, 2011 - 11:19am
We are on about 3 treatments in a row now where Hailey has gotten sick after. The last 2 she threw up in the car on the way home and then into the night once we got home. Not sure if this has become the new norm or not. Early on this happened, then we went on a stretch where she did not get sick (just a little off in energy and mood), and now we are back on where she has been getting sick for about a 1/2 a day after and also off in energy and mood for a couple days.
On a lighter note, the Sub 20 Club is set for the Team Hailey 5K on April 16th (see last journal entry). Looks like we have a group of about 7 or 8 of us that will be taking on the challenge. Training is underway. It's going to hurt bad.
Saturday, February 12, 2011 - 9:21am
"The sub 20." Under 20 minutes in a 5k run...AKA "The sub 20 club." It's the elite level for totally average runners like me. I've probably only done it a couple times in my life, and it was in my much younger years, and it WASN'T easy! It hurt.
I am definitely not in that kind of shape right now, but this year at the Team Hailey 5k I am going to run a sub 20 if I have to throw up at the finish line doing it. And I need my fellow average runner buddy boys to accept the same challenge with me. That's you Bill Schmolinske, Rick Grable, Johnny Boldt, Cory Colvin, Doug Kohlbeck, Todd Arft, Greg Mader, Brad Nerat, Brent Nerat, Paul Kelly, Joel Fleischman (depending on status of knee), Adam French and any of my other buddies who run a little and/or are willing to accept the challenge.
Now on the surface guys I know this sounds like something you'd instantly want to say No to, or think you couldn't do, but we need this. We need to prove to ourselvs we can still push past what's comfortable. We can still achieve something mentally and athletically that provides some evidence we are not totally over the hill. That we still have that elite level athletic mediocrity we once had.
And the best argument of all, If Hailey and kids like her all over the country can live with pain and suffering every single day of their lives, with no end in sight, we can certainly push ourselves for the next 2 months in training, and then for 19 minutes on April 16th.
Come on boys...who's up for the challenge? We'll all do it together, as a group. A wild pack of buddy boys tearing up the course at an average of 6 1/2 minute miles. We're gettin old, but we're NOT DONE YET!
In the words of Kanye..."that, that don't kill me, can only make me stronger."
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