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Tuesday, September 25, 2007 - 6:33pm

Hailey's platelet counts jumped back over 400,000 so we were able to get a full chemo treatment today.  Grandpa Meltz went with Hailey and I so Shannon could stay home with Faith and give her some one-on-one time.  The treatment itself was pretty typical...Hailey hated just about every second of it.  My dad and I took turns carrying her around or distracting her with everything we had in our arsenal.  We got through it.

So far she is doing fine following the treatment. In fact, I am sitting at the kitchen table right now watching her and Faith do the "doopa dance" to a new CD they got in the mail today.  The "doopa dance" is really quite a sight.  I guess you have to see it to truly understand, but the point is she is very happy and seemingly unaffected at this point by the treatment today. 

We battle on...

 

Thursday, September 20, 2007 - 9:13am

We were unable to get a chemo treatment on Tuesday.  When Hailey's blood test results came back, we were informed her platelet count had dropped to 66,000.  In order to do the chemo, we need her counts to be at 100,000 or higher.  The drop in her counts is most likely from the third chemo drug we administered to her at home (Temodar) a few weeks ago.  Apparently that chemo drug can have a delayed onset like this, meaning the counts can be fine for weeks after the treatment ended and then drop for a period of time. 

So, we are scheduled to go back again next Tuesday.  If her counts have come up to 100,000 or very close, we will start up the next phase of her chemo treatment.

Otherwise things are well with Hailey.  She continues to be her usual happy self.  She loves to play outside, go to school, go on swings, climb on chairs, push child sized buggies and shopping carts around, play in the sand, run around on the trampoline (when no one else is in there but her), play duck duck goose...most of the usual things kids like to do.  Our biggest battle is coming around bath time.  For some reason, she has grown to HATE being in the water.  It has become a 2 person job.  One of us holds her, the other washes her up while she screams and kicks and yells "Ouwie" the entire time.  We think it has something to do with her recognition of her feeding tube every time her shirt is off.  She is very sensitive to it when she can actually see it connected to her body.  When shirt is on, she doesn't make a peep about it.  Shirts off, crabby Hailey comes out.  I guess we can't blame her.  Her poor little body looks like a battlefield between the port, her feeding tube, bandages and left over residue from bandages, and of course her very skinny physique. 

Big sister Faith also seems to be doing well.  All in all we think she is handling things as can be expected.  Of course she is 3 (and a sensitive 3 year old at that) so it is impossible to say how this is affecting or changing her for sure, but she seems to be doing fine so far.  We will continue to try to make sure she understands that she's just as important as any of us in this whole picture and keep a close eye on her in this process as well.  

Thursday, September 13, 2007 - 8:19pm

The teamhailey.org website is NOT quite ready. It will only be a couple more days...finishing touches are taking place last minute as they often do in a project of this size and nature. We'll post a journal entry when it is officially up and running. Otherwise things are going well in the Meltz house. We had a full week off from trips to Madison and Hailey continues to be her usual self. Chemo starts up again this coming Tuesday. Our reprieve went too fast!

Monday, September 10, 2007 - 11:04am

Just wanted to let everyone know that Grandma Peg is having a huge rummage sale this weekend (20+ families!) with ALL PROCEEDS going to research to find a cure for Hailey's tumor type. Details below:

When: Saturday, September 15th

Time: 7:30 a.m. - 4:00 p.m.

Location: 1500 Alcan Drive, Menasha

(behind the old Valley Fair Mall)

Please feel free to spread the word and thanks in advance to all who attend or have contributed to this event in one way or another.