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Monday, February 9, 2009 - 10:33am

Good News!  On Thursday Hailey had a follow up eye exam in Madison and at this time her vision is unaffected by the tumor.  She has had no loss of visual function.  And this will be the last eye exam where she has to have the electrodes hooked to her head and an eye taped shut (a process that scares her and really gets her worked up).  Uncle Joe came with us to the appointment this time and helped pass the time for us and for Hailey, and then he took us all to Ellas Deli afterwords for lunch.  Hailey loved it there.  We've driven by that place a hundred times and never went in, but we will definitely have to go back when Faith is with us next time.  

So we will have another eye exam in six months, unless something would warrant an appointment sooner.  We also have another MRI at the end of February, which will be the first of her regularly scheduled post-chemo MRI's.

Just a reminder, the Run/Walk sign up is now activated on the EVENTS section of the site.   

 

Friday, January 23, 2009 - 11:46am

We have not updated in a while, so Happy New Year to all who follow this site!  We had a wonderful holiday.  The kids had a blast and we got to see lots of family and friends.    

My main purpose for this quick entry is to alert you all that the sign up for the 2nd Annual Team Hailey 5k Run/Walk for a cure is now live.  Click on the event in the "Events" section of the site for more information.  We are looking to blow away our numbers from last year (500+ participants, 46K raised) so we hope you will all strongly consider participating and spreading the word to everyone you know to do the same. Grandma Peg and her team are and have been already hard at work on marketing, getting sponsors, planning, etc.  We are excited for year 2, and a little bit wiser from last year's first time experience! 

The quick update is that Hailey is doing well.  Next MRI is at the end of February.  We're enjoying the break from chemo and are using the extra time we have to catch up on life, business, family time, friends, fundraising, etc.  We're working hard (and playing hard at times too).   

Stay tuned....  

Friday, December 19, 2008 - 5:02pm

We made it to Madison and back, safe and sound.  The port is out and Hailey is a bit crabby about the incision and the bandage, but all in all we are doing fine over here.  Thanks for all your well wishes and concerns, and a HUGE thank you to whomever it was that blew open our driveway!  

Here's hoping we don't need that port again for a long, LONG time.

Happy holidays to all of you.  Our family truly thanks you for the caring and support of the last two years, and wishes you all nothing but love, happiness, and health over the holidays and the year to come.

We'll write again soon. 

Thursday, December 18, 2008 - 8:24pm

Hello:

Tomorrow is the big day; Hailey gets her port surgically removed! It’s really hard to believe. For us, it represents a break from CHEMO! We pray it is a very long break! We’ve all grown so accustomed to Hailey having her port; it will almost be strange to see her without it. I wonder what will go through her little mind. If you think about it, she probably doesn’t remember a time when she didn’t have her port. Today, she asked me how the doctors are going to take it out? Wow, she’s getting smart!  

We have to be to Madison by 9:30 am and she’s scheduled for surgery at 11:00 am. Of course a snowstorm is coming too, just to make things interesting. Faith is coming with us as well. She really wanted to come along, even after we told her there would be no snacking in the car during our 2 ½ hour drive to Madison, because we can’t eat in front of Hailey.  Let’s see, a long car ride, in the snow, with 2 hungry little ladies. Sounds like a blast! 

I also wanted to say a special THANK YOU to my Aunt Carolyn and Cousin Tammy for putting together a great cookbook called “The South is Cookin’ for Hailey”. They live in Alabama and have collected great recipes of the South, featuring traditional Southern, Cajun, and Creole recipes. We have it for sale in the Team Hailey Store. Check it out! 

Wish us luck tomorrow! I’ll update all of you tomorrow night. 

Shannon