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Tuesday, May 24, 2011 - 5:48pm

hi Friends! Love the pics with pixies, princesses, umbrellas (Shannon, I'm glad it's you under Hailey's umbrella instead of me - I think I'd be on my knees!) and the family together - but what's that fuzzy stuff on Brian's chin? it's great you had such a super trip. Glad to hear Team H is doing so great. Thanks for the updates! John
john edwards
appleton, WI 54913

Tuesday, May 24, 2011 - 3:39pm

I am glad you had a great time!! The pics are great!! I am sorry to hear Hailey is still getting sick, but hopefully that means it is working. Hugs and prayers to you all!!
Andrea Beecher
Appleton, WI

Tuesday, May 10, 2011 - 3:25pm

Your site is wonderful. My daughter had surgery on a plga/jpa this past november and obviously the experience leading up to it, the surgery and the post op experience has changed our lives and outlook on life forever. every minute matters........ thanks for the inspiration.
ira kittrell
holliston, MA

Sunday, May 8, 2011 - 9:21am

So glad we got a chance to meet your wonderful family in DisneyWorld! I'm sure you enjoyed the rest of your trip, so sad to leave Flordia & the Village! Thanks for sharing your website with us! We will be watching it closely and will let you know any updates we have as well. We go in for 6 month f/u June 27! Great meeting you again!
Heather Benzing
Decorah, IA 52101

Friday, April 22, 2011 - 9:45am

Chris Lehrer
Menasha, WI 54952

Friday, April 22, 2011 - 9:04am

Ohhhh, what a relief! Too bad the weather didn't co-operate on the way home, though. Darn snowstorms in Wisconsin. The run results are so impressive and it's always good to see Hailey enjoying all the people and activities going on. And Faith even beat my time again! I'm going to have to work on that so the little squirt doesn't keep doing that to me. Hoping the "send-off" last nite went well and the girls are excited for Disney! I'd like to be a little mouse in your pocket to watch their faces there. Such joy it will bring. Love to all, Aunt Krissie
Kris Mader
Menasha, WI

Thursday, April 21, 2011 - 7:10pm

Yeah! Good news on the MRI, hopefully the beginning of a downward trend/continued shrinkage'. Team Haily 5K Run. This community is lucky to have families like you!
Shona Lenss
Appleton, WI 54911
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Thursday, April 21, 2011 - 3:14pm

Good news! I'm so happy to hear that Hailey's tumor is not growing at this time. She is such a beautiful girl, and it was so nice to finally meet both her and Faith on Saturday. Oh, and Brian...22 minutes is awesome! I"m just so happy that I ran the whole way! Here's to both of us improving next year! Our thoughts and prayers keep coming your way...:)
Kathy Kase
Pewaukee, WI 53072
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Saturday, April 16, 2011 - 4:17pm

Hailey, Brian, Shannon and Faith. I was an honor to part of Hailey's run today. It was my first race and I think I may need to do more. Hailey you are a trooper and keep on keep us smiling:)
Darnell Eveland
Edgerton, WI

Wednesday, April 13, 2011 - 10:51am

Keeping Hailey in our prayers! What a beautiful smile !! Blessings
Tonia Munger
Neenah, WI 54956

Friday, April 1, 2011 - 12:33pm

Brian and Shannon, I have been thinking about you guys especially the last few days since we just had a lecture in our Tumor Immunology class from a MD/PhD studying DC based tumor vaccines for brain tumors. He works mostly with GBM patients, but I spoke with him after class, and he said he would be happy to talk with you if you have any interest. He is using a technique I have not heard of before with loading DCs with tumor mRNA, and it sounds hopeful. The problem is you need some cells from tumor for this to work. From what I understand Hailey's situation would not safely allow for this. Additionally, they have diluted out samples from large cell numbers and still obtained positive results, but have not tried directly from very small biopsy cell numbers. Anyways, please contact me if you have any interest in his science and the future it could potentially hold. He was a great guy and would be an interesting resource if you are interested. Take care and wishing you all the best! Cousin Shelley
Michelle Zullo
Durham, NC 27704
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Friday, April 1, 2011 - 12:09pm

Hello! Happy to hear that your trip was worthwhile and that the girls had fun! We would have rather had you say you had been at Disney World--of course! So sorry Hailey has been getting sick from her treatments. As the walk approaches let us all keep in mind that we are walking for research to bring kinder and gentler treatments and even better research to find a cure both for Hailey and all the other kids! Love YOU! Jeri & Tony
Jeri & Tony Kamasky
Sun Prairie, WI 53590

Thursday, March 3, 2011 - 11:02pm

Poor Hailey--maybe they can back down on the CPT-11, the major culprit when on that with the Avastin protocol. Or be sure to get Zofran or one of those in her early on. We had the same thing early then about midway. Hope it is better next time. Hope she is putting on some nice weight!!! Thanks for all your fundraising efforts--let's stamp out JPA's!!!!! blessings, terri & family www.caringbridge.org/visit/gageburi
terri buri
Paducah, KY 42001

Thursday, March 3, 2011 - 2:16pm

sorry to hear Hailey is getting sick:>( I hope the treatments get better for her, and you. Joel and I are sad to we won't be able to make the run this year. We will be there in spirit and will be running our own 20 min. in AZ! Donation on its way too! love you guys!
Pam Fleischman
Campbellsport, WI 53010

Tuesday, March 1, 2011 - 1:44pm

As the mother of child who had JPA & subsequent surgery for the same, I am supportive & sympathetic of what you are going through. Our son was left with some deficits after the surgery, but he has no cognitive deficits, just physical ones. Those are the ones most folks see, and if they don't know the whole story, quick to judge. I hope & pray for your family and especially Hailey for a cure & certainly less invasive treatments soon. I work weekends, so will not be able to join the walk, but I will pledge money for her cause.
Marty Polzin
Appleton, WI 54911
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Monday, February 14, 2011 - 7:48pm

Sub 20 Club. Bring It! Uncle John
John Boldt
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Wednesday, February 9, 2011 - 9:16am

Oh I'm so glad to hear of some shrinkage... you are always in my thoughts and prayers.
Jill Burns
Greenleaf, WI, WI 54126

Friday, January 28, 2011 - 12:05pm

Great & encouraging news for Hailey!!! Blessings to you all!
Shona Lenss
Appleton, WI 54911

Monday, January 24, 2011 - 4:31pm

Glad to hear the good news. Looking forward to seeing everyone at the Run/Walk! Inez
Inez Snyder
Oshkosh, WI 54904

Monday, January 17, 2011 - 2:09pm

We're so happy to hear the great news...keep fighting Hailey!!
Kathy Kase
Pewaukee, WI 53072