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Saturday, April 16, 2011 - 4:17pm

Hailey, Brian, Shannon and Faith. I was an honor to part of Hailey's run today. It was my first race and I think I may need to do more. Hailey you are a trooper and keep on keep us smiling:)
Darnell Eveland
Edgerton, WI

Wednesday, April 13, 2011 - 10:51am

Keeping Hailey in our prayers! What a beautiful smile !! Blessings
Tonia Munger
Neenah, WI 54956

Friday, April 1, 2011 - 12:33pm

Brian and Shannon, I have been thinking about you guys especially the last few days since we just had a lecture in our Tumor Immunology class from a MD/PhD studying DC based tumor vaccines for brain tumors. He works mostly with GBM patients, but I spoke with him after class, and he said he would be happy to talk with you if you have any interest. He is using a technique I have not heard of before with loading DCs with tumor mRNA, and it sounds hopeful. The problem is you need some cells from tumor for this to work. From what I understand Hailey's situation would not safely allow for this. Additionally, they have diluted out samples from large cell numbers and still obtained positive results, but have not tried directly from very small biopsy cell numbers. Anyways, please contact me if you have any interest in his science and the future it could potentially hold. He was a great guy and would be an interesting resource if you are interested. Take care and wishing you all the best! Cousin Shelley
Michelle Zullo
Durham, NC 27704
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Friday, April 1, 2011 - 12:09pm

Hello! Happy to hear that your trip was worthwhile and that the girls had fun! We would have rather had you say you had been at Disney World--of course! So sorry Hailey has been getting sick from her treatments. As the walk approaches let us all keep in mind that we are walking for research to bring kinder and gentler treatments and even better research to find a cure both for Hailey and all the other kids! Love YOU! Jeri & Tony
Jeri & Tony Kamasky
Sun Prairie, WI 53590

Thursday, March 3, 2011 - 11:02pm

Poor Hailey--maybe they can back down on the CPT-11, the major culprit when on that with the Avastin protocol. Or be sure to get Zofran or one of those in her early on. We had the same thing early then about midway. Hope it is better next time. Hope she is putting on some nice weight!!! Thanks for all your fundraising efforts--let's stamp out JPA's!!!!! blessings, terri & family www.caringbridge.org/visit/gageburi
terri buri
Paducah, KY 42001

Thursday, March 3, 2011 - 2:16pm

sorry to hear Hailey is getting sick:>( I hope the treatments get better for her, and you. Joel and I are sad to we won't be able to make the run this year. We will be there in spirit and will be running our own 20 min. in AZ! Donation on its way too! love you guys!
Pam Fleischman
Campbellsport, WI 53010

Tuesday, March 1, 2011 - 1:44pm

As the mother of child who had JPA & subsequent surgery for the same, I am supportive & sympathetic of what you are going through. Our son was left with some deficits after the surgery, but he has no cognitive deficits, just physical ones. Those are the ones most folks see, and if they don't know the whole story, quick to judge. I hope & pray for your family and especially Hailey for a cure & certainly less invasive treatments soon. I work weekends, so will not be able to join the walk, but I will pledge money for her cause.
Marty Polzin
Appleton, WI 54911
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Monday, February 14, 2011 - 7:48pm

Sub 20 Club. Bring It! Uncle John
John Boldt
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Wednesday, February 9, 2011 - 9:16am

Oh I'm so glad to hear of some shrinkage... you are always in my thoughts and prayers.
Jill Burns
Greenleaf, WI, WI 54126

Friday, January 28, 2011 - 12:05pm

Great & encouraging news for Hailey!!! Blessings to you all!
Shona Lenss
Appleton, WI 54911

Monday, January 24, 2011 - 4:31pm

Glad to hear the good news. Looking forward to seeing everyone at the Run/Walk! Inez
Inez Snyder
Oshkosh, WI 54904

Monday, January 17, 2011 - 2:09pm

We're so happy to hear the great news...keep fighting Hailey!!
Kathy Kase
Pewaukee, WI 53072

Sunday, January 16, 2011 - 12:30pm

Great news!!! See you at the run.
Adam and Jennifer French
Cedarburg, WI

Saturday, January 15, 2011 - 11:54pm

wahoooooooooooo!!
Kelly Nerat
Campbellsport, WI 53010

Friday, January 14, 2011 - 9:08pm

Hallelujah! An answer to so many prayers! Can you just hear the huge, collective sigh of relief? Time to pray even harder for more good news. Love, Cheryl Stinski
Cheryl Stinski
Sherwood, WI 54169

Friday, January 14, 2011 - 12:00pm

Awesome news!
Michele Foote
Oshkosh, WI 54901

Friday, January 14, 2011 - 10:35am

Yeh, so happy for all of you!! Way to go Hailey and family!!! We have been doing lots of praying! Hugs!
Andrea Beecher
Appleton, WI

Friday, January 14, 2011 - 9:39am

THANK THE LORD!!!!!! gosh, my eyes immediately welled up with tears of joy! KEEP UP THE STRONG WORK HAILEY!!!!!!! such great news, thank you for keeping us updated!!!!
gretchen marek
oconomowoc, WI 53066

Friday, January 14, 2011 - 9:34am

What wonderful news!!! I am so relieved for you. Waiting for results can be so agonizing especially when you are trying something new. Our family will continue to pray that the treatment continues to work very well and that Hailey continues to do ok with it. God's blessings to your family. Carly Laabs (Sienna'S Mom) www.caringbridge.org/visit/siennalaabs
Carly Laabs
Brillion, WI

Friday, January 14, 2011 - 9:29am

Hailey and family, this is incredible news and we are so happy for you all! I have been following Hailey's journey for almost 2 years now and I think about you every day. Thank you for all of the wonderful work that you're doing to help us find a cure. My little Danny is fighting for you too! http://www.caringbridge.org/visit/dannymarchibroda Amy Marchibroda amymarch@microsoft.com
Amy Marchibroda
Portsmouth, NH 03801
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